Parents of ill Carnforth son thank community
The family of a son with a rare liver condition took on various fundraisers including lighting up the Ashton Memorial to help their poorly son.
Four-year-old Finley Mayor, from Carnforth, was born with a rare liver condition, alpha 1 antitrypsin deficiency (AATD), in 2012, for which there is no cure.
He was born with jaundice which stayed with him for more than 12 weeks.
His parents, Rob and Hannah, are both carriers of AATD. The inherited condition affects around one in 3,000 to one in 4,000 people in the UK.
His parents, Rob and Hannah Mayor have worked tirelessly to raise funds for the Children’s Liver Disease Foundation (CLDF).
Rob spoke to the Lancaster Guardian last year and said Finley “is doing well at the moment.”
“He is doing fine at the moment, nothing has changed which is good and he is only on a small amount of medication.
“I just hope it stays that way.”
Since then the family, with the help of the community, have raised more than £3,000 for the charity.
Hannah arranged for the Ashton Memorial and Blackpool Tower to be lit up yellow to mark Big Yellow Friday – the charity’s annual awareness and fundraising day.
“Many people do not even realise that liver disease affects children but CLDF has been there for us with information and support ever since Finley was diagnosed,” said Hannah.
Bolton-le-Sands Primary School, where Finley and his older brother Callum attends, held a non-uniform day, allowing pupils to dress in yellow for the day in exchange for a donation to the charity.
Even the local Spar store, joined in.
Staff put together a hamper full of yellow goodies and sold raffle tickets, raising more than £400 in a day.
Hannah said: “We are absolutely overwhelmed with the amount raised and the fantastic support we received from the community.
“Seeing local monuments lit up yellow was the icing on the cake!”