A dad whose son has a rare liver disease is taking part in the Great North Run for charity.
Rob and Hannah Mayor’s son Finley was disagnosed with the rare condition soon after birth.
The couple, from Carnforth, decided that in 2012 they would raise would try to raise £5,000 each year for Children’s Liver Disease Foundation (CLDF).
The support from family, friends and their community means they are well on course and Rob is hoping that his participation in the Great North Run next weekend will help him reach this year’s target.
Hannah said: “Finley became very poorly soon after his birth last June and after tests at our local hospital we were transferred to Leeds General’s Children’s Liver Specialist Unit.
“After lots of tests, X-rays and scans and what seemed a long wait we finally got a diagnosis for Finley, which was Alpha 1 Antitrypsin Deficiency, a very rare genetic liver disease, for which there is currently no cure.
“Obviously our world has turned upside down. It’s difficult to explain to people as no one has heard of it, but we have finally come to terms with it and decided that we should focus on fundraising to promote the charity and to raise as much money to help fund research.
“Rob has never done any running before but he has taken his training for the Great North Run really seriously.
“We are fortunate to have enjoyed great support from our local community.
“Events we have been involved in this year include a charity football tournament, 10 mile sponsored buggy push organised by our eldest sons nursery, a 34 mile sponsored canoe and bike ride organised by a football team and a raffle at a dance show arranged by my sister in law.
“This has all been fantastic and helped us raise a lot of money for CLDF.
“If we could reach our target with the Great North Run, it would really help us feel we have given something back to a charity which has been a great support to us.”
To support Rob’s Great North Run visit http://www.justgiving.com/FinleysDaddyxxx/
For information on CLDF visit childliverdisease.org.